The Last ALS Ice Bucket Challenge You Ever Need To Watch (Watch Whole Video) - General

[media]http://www.youtube.com/watch?v=h07OT8p8Oik[/media] Yes it starts off weird but seriously. Watch the whole video.

Wow that was some powerful shit.

Made me cry :( ALS doesn't run in my family, but my step dad did have it and subsequently died because of it. It truly is horrible. I remember he kept part of what he was going through a secret to my mum because he didn't want her to worry too much. Miss him.

fuck

Muscle degenerative diseases are the most sad, brutal things to live with or see in your family. My aunt has multiple sclerosis, and every time I see her its hard not to break down. When I was younger it never really seemed like a big deal, and then she started taking a cane with her, then she would always be using it and shaking because she could barely support herself. Now she walks with two walking sticks and we always try to help her stand up out of chairs when we're there. She even had a large operation to try and slow it down by putting stints in her neck, but it didn't help. Watching your family go through this stuff is so fucking hard, especially when you know you cant even do anything about it.

Poor guy.

I honestly wasn't aware of ALS before all of this ice bucket challenge stuff floating around, so I've got to say it's quite effective. I hope it helps the cause.

"I am so fucking scared of ALS because I was diagnosed 5 months ago" ... Just devastating

My uncle has ALS, and it is truly a sad thing to see him. ALS is a terrifying disease. Imagine being completely aware of slowly losing control of every part of you. Eventually, you are trapped in your own mind, barely able (or completely unable) to communicate in any understandable way. Seeing all, but unable to show any emotion. Being asked a question and forced to only answer "yes" or "no" through head movements, blinking patterns, etc. People have to do almost everything for you, except for breathe, which can even be a challenge. Most things you eat need to be pureed, and laboriously drank through a straw. Your muscles can barely produce suction in the straw after a certain point. The worst part? The one and only way my uncle's life will continue from here. My uncle is destined to die, all while being unable to do anything about it. But donating to this campaign can change everything, and I sincerely hope it does. I don't want my uncle to die, but he is going to. I just hope this campaign keeps others from having to go down the same path as him.

Every once in a while they have these commercials over here where some person asks for donations to research a cure for ALS, at the end they tell you that a cure for them was too late and they have already died. Pretty depressing stuff.

I made the mistake of reading the comments, jesus fuck How can you literally not give a shit about this?

Well, I got through the first 2 minutes or so thinking "well it's just another ice bucket video" and then my heart absolutely sank Jesus Christ, there's just some people who don't deserve their inevitable, impending death, especially at such a young age.

I knew that ALS was some sort of disease/ condition with all the bucket videos, but now i checked in wikipedia what it really is. And what a horrifying disease it is. I had no idea that it is something like this. Can't even imagine how horrible it must have been for him to hear doctor tell that he has ALS.

Fuck these videos are too much for me to watch. I can only scroll down and listen.

idk what's more depressing, the video or the comments below.

to be honest I wasn't entirely sure of ALS as I've known it as MND. It is pretty terrible, my granddad has it and a little under a year of being diagnosed now struggles to speak and must now be fed the same as in this video, through a stomach tube. Luckily so far it hasn't affected his limbs so he is still able to do what he enjoys but the scary part is you just have no idea how long till you just cannot do anything anymore.

ALS is crazy. I'm happy it is getting spotlight but some people are doing the ice bucket challenge for the wrong reason. A good amount of people who do it, don't even go deeper to find out what ALS actually is.

I'm happy for all this fundraising, but what about all the other life ruining disorders? Makes me kind of sad because there's just so many out there, and they're just singling out ALS because some guy made a viral campaign for his friend. One of my friends has Friedreich's Ataxia, she was able to walk a couple of months ago, but now she's confined to a wheelchair and every day loses more control of her body. Meanwhile nobody ever really hears much about Friedreich's Ataxia, and she fought her hardest once she was diagnosed to get it recognized. Was truly heart breaking stuff.

[QUOTE=flamehead5;45752567]Muscle degenerative diseases are the most sad, brutal things to live with or see in your family. My aunt has multiple sclerosis, and every time I see her its hard not to break down. When I was younger it never really seemed like a big deal, and then she started taking a cane with her, then she would always be using it and shaking because she could barely support herself. Now she walks with two walking sticks and we always try to help her stand up out of chairs when we're there. She even had a large operation to try and slow it down by putting stints in her neck, but it didn't help. Watching your family go through this stuff is so fucking hard, especially when you know you cant even do anything about it.[/QUOTE] I know the feeling, my mom suffers from it as well as fibromyalgia and chronic fatigue syndrome but she's managed to slow down it's development over the years by continuously using her muscles, if you just stop and slow down multiple sclerosis strikes fucking hard so stuff like simply going out for a walk, lifting light weights and doing step training can really help. However it hurts when I see her get sick meaning she can't do any of this so it ends up developing again at a faster rate, it really hurts seeing her in pain all the time but she refuses to let it beat her. Just wish there was a cure for these types of things instead of just treatment to reduce its effects, its like a chisel just chipping away at a block until there is nothing left.

fuck, i just read about ALS and now i'm getting conscious of my every muscle movement to see if im losing it [editline]21st August 2014[/editline] ...I just had a severely depressing thought. I'm spoiler-tagging it because it's too sad: [sp]Imagine how it was for the mother when she found her son was diagnosed too? And she couldn't do anything to comfort or soothe him despite being the only one who would know what he's going through? All she could do was hear the news.[/sp] What a damn cruel disease.

This is touching and all but... If your family has an obvious line of a fatal genetic disease, why would you want to have children of your own?? Isn't that selfish as a parent? Isn't it better to adopt if you want kids?

i hope als gets als and dies slowly

[QUOTE=fpsfanboy;45764797]This is touching and all but... If your family has an obvious line of a fatal genetic disease, why would you want to have children of your own?? Isn't that selfish as a parent? Isn't it better to adopt if you want kids?[/QUOTE] His mum would likely not know that it ran through the family, and he was born before this knowledge arose.

that was hard to watch. i really feel sorry for anyone who has a close friend/sibling/cousin/person they know who suffers this disease. best wishes to all of you! i dont know anyone who has als, but it must be terrible.

[QUOTE=Azza;45757885]I'm happy for all this fundraising, but what about all the other life ruining disorders? Makes me kind of sad because there's just so many out there, and they're just singling out ALS because some guy made a viral campaign for his friend.[/QUOTE] True there are way too many diseases/disorders/shit things that need attention, but I'd rather one of them get a shitload of extra publicity and donations than none of them. I mean it's not like this campaign is stealing money from other causes or anything like that, like nobody would say "Well I was going to donate money to cancer research but [i]man[/i] these ice bucket videos are great so I'll donate to ALS research instead!" People who donate/were planning to donate to those causes still will, and most people who donated to ALS probably weren't planning to donate to anything else in the first place.

There's someone in the comments saying that people with ALS just don't eat their vegetables and that if they ate their vegetables they wouldn't get ALS therefore people shouldn't donate to this charity. Youtube comments never cease to amaze me they really don't.

My grandfather had ALS, and we went to visit him very regularly because it was way too difficult for him to pick up a phone. I'm still worried that I'll get diagnosed with it later.

[QUOTE=Jimesu_Evil;45767452]and most people who donated to ALS probably weren't planning to donate to anything else in the first place.[/QUOTE] That's a stupid rationalization. Most people who donated to ALS were most likely not planning to donate at all but did because it went viral.

God damn it. At first I thought he was going to do that bikini stuff just for views but then I saw the other part. Fuck, my mood is going to be ruined for probably a week now.

I read Tuesday's with Morrie back in highschool, which is a memoir involving Mitch Albom visiting his former Sociology teacher Morrie every Tuesday for weeks as Morrie slowly succumbs to ALS. It is seriously one of the saddest things ever, getting this first hand account of this. It is the only book I can ever remember that actually made me cry because it is so damn sad. It is a ridiculously good read, and a lot of insight in to a person suffering from ALS and a person who is very aware of their impending end and accepting it.