• Adventures in Epilepsy
    55 replies, posted
[QUOTE=Malumbre;16148839][QUOTE=KENMORE;16145140][highlight](User was banned for this post ("Arse" - Dragon))[/highlight][/QUOTE] Dragon banned someone for being a dick? Hypocrite.[/QUOTE] Wrong end.
[QUOTE=KENMORE;16145140][img]http://www.thoraxcorp.com/flasher.gif[/img] Posting in an epilepsy thread. [highlight](User was banned for this post ("Spam, trolling" - Rusty100))[/highlight] [highlight](User was banned for this post ("Arse" - Dragon))[/highlight][/QUOTE] Ninja'd
Are you allowed to drive? Have you ever had it happen during school or a public place?
You cant get your licence. law here is you have too be seizure free for a year.
My friend's mum has a different type of seizure, she just uncontrollably yells and screams at things that don't exist, and she can't stop it.
I had epilepsy from year 3 - year 6, it started quite mild just shaking jaw, and the last seizure I had was 4 years ago I was hospitalized, when I used to have epilepsy I used to be worried about going to someones house and having a seizure. They thought that mine was sleep related but I later found it was random. I am lucky enough to have been cleared, but I still remember what it is like and I still worry about having one in a public place, I was teased at school for 2 years being called "Spaz". Anyway story aside. My seizures started with a metal sort of tingle in my left jaw (In the day I would sometimes have these like warnings or when I am about to have one) then my jaw begins to shake, I lose all my senses sight, sound and my whole body begins to shake, during this I feel trapped inside my head all I have in my thoughts, it feels like an age has passed when I come back around.
Sometimes I have electrical discharge from my left upper arm down to my left chest, at the time while it's happening I can't speak for few seconds and have little trouble with breathing, same is with my motor, I'm suddenly finding myself standing still... is this by the way any kind of symptom of epilepsy?
I have Juvenile Myoclonic Epilepsy, and it sucks. As a result I either experience episodes of Tonic Clonic Epilepsy or Complex/Simple Partial Epilepsy, with the former being the biggest problem but the latter being far more common. I had a seizure in the middle of university once which led to me falling forward onto a hard floor and fucking up my face a bit. The good news is that flashing lights don't affect me and, despite warnings from the doctor, alcohol consumption doesn't seem to do anything to me either. The bad news is I have to wait a year since my last seizure before I can learn to drive (I have had to put it off for about three years now) and also my medication causes shaking, sometimes quite severe.
That's it. I said I'd do it. I said that if one more person made one of these kind of threads I'd do it. Tomorrow. I need to sleep.
OP should get the left and right hemispheres of his brain seperated. [url]http://wimp.com/twobrained/[/url] Fucking amazing. Seems pretty risky though.
[QUOTE=Faren;16153940]That's it. I said I'd do it. I said that if one more person made one of these kind of threads I'd do it. Tomorrow. I need to sleep.[/QUOTE] wat [QUOTE=Aberhamlinken;16150680] Have you ever had it happen during school or a public place?[/QUOTE] A few times. I hate it, not only does it leave you feeling particularly vunerable, but 9/10 people around you will usually call the ambulance. Which isn't necessary. So when the paramedic arrives, he not only has to waste time staring at my while I snore on the floor. But he then has to wait until I'm coherent enough to sign the "I don't need to go to hospital" form when he could be dealing with someone who needs it a LOT more than me.
i feel sad for you. my grandmother had it when she was younger, she takes a lot of pills to prevent it and i never saw it happen so id like to ask is there a cure to any kind of epilepsy? couldn't you take some sort of medicine to hold it off like my grandmother or is it a differet kind of epilepsy also, best luck for you man :(
[QUOTE=LtBubbles;16154061]i feel sad for you. my grandmother had it when she was younger, she takes a lot of pills to prevent it and i never saw it happen so id like to ask is there a cure to any kind of epilepsy? couldn't you take some sort of medicine to hold it off like my grandmother or is it a differet kind of epilepsy also, best luck for you man :([/QUOTE] Epilepsy is incurable. You can only manage the convulsions. There are about 20 (maybe more) anti-epileptic drugs on the market. And the brain being so damn complicated. It is literally just trial and error one at a time until you find a brand and dosage that works for you. Whats more annoying is you can't just hop from drug to drug. You have to be wiened off and onto them. So you start with a tiny dose, and increase the dosage each week. It usually takes anywhere between a month and 6 weeks to reach full dosage. And if you're switching meds you have to wien yourself ONTO the new drugs, BEFORE you come off the old drugs. And you can get some crazy side effects. I remember the one time it all went to shit, I had night terrors for a week because of whatever reactions the meds were causing in my brain.
[QUOTE=Cluckyx;16154102]Epilepsy is incurable. You can only manage the convulsions. There are about 20 (maybe more) anti-epileptic drugs on the market. And the brain being so damn complicated. It is literally just trial and error one at a time until you find a brand and dosage that works for you. Whats more annoying is you can't just hop from drug to drug. You have to be wiened off and onto them. So you start with a tiny dose, and increase the dosage each week. It usually takes anywhere between a month and 6 weeks to reach full dosage. And if you're switching meds you have to wien yourself ONTO the new drugs, BEFORE you come off the old drugs. And you can get some crazy side effects. I remember the one time it all went to shit, I had night terrors for a week because of whatever reactions the meds were causing in my brain.[/QUOTE] What medication are you on? I'm on Epilim Chrono which is designed to spread the effects of the medication out over the whole day. The worrying thing, though, is that I'm on maximum dosage but I still sometimes have the occasional partial seizure (like yesterday).
400mg of Tegretol Retard :hurr: In this aspect Retard means "Slow" they're slow release pills. They have to be taken exactly 12 hours apart to maintain a constant level of the medication in the blood stream at any time.
I gave you a heart.
Last one awake lock the doors!
My dad has epilepsy. I saw him have a seizure once, because he forgot to take his medication for 3 days. It's fucking scary. He was on the computer, then he fell and started shaking etc.. When he woke up, he wasn't even able to tell my name, or if he had a job. The first thing he was able to remember was the name of our guinea pig :v: But if he takes his medications, everything is fine. He also had a seizure while driving (the sunlight was flashing through the trees), he drived into the ditch but hopefully he wasn't wounded.
[img]http://www.deviantart.com/download/118962307/Battle_Seizure_Robots_by_Chiisutsu.gif[/img]
I think it's cute that people keep on posting these flashing pictures to hope to give people in this thread seizures. Dumbasses: photosensetive epilepsy is only one of the types. I've had all of my major seizures away from any computer or tv screen, at random times. The only thing I've experienced in front of a computer/tv are a few random jerks and twitches.
[QUOTE=Dmarine;16156780]I think it's cute that people keep on posting these flashing pictures to hope to give people in this thread seizures. Dumbasses: photosensetive epilepsy is only one of the types. I've had all of my major seizures away from any computer or tv screen, at random times. The only thing I've experienced in front of a computer/tv are a few random jerks and twitches.[/QUOTE] Agreed. Whenever you say epilepsy, people always assume photosensitive. When I told my new manager I had epilepsy, he started organising to get a lot of the flourescent lights changed because he read somewhere that they flicker and give people seizures.
[quote]fight or flight mode[/quote] Argh, I hate this phrase so much.
When I had epilepsy, I didn't have any seizures (I mean, little to none) and I stopped breathing when it happened, luckily today this shit is cleared out. EDIT: To Cluckyx, epilepsy is curable if you get it under a low age (3 to 8 years old).
[QUOTE=Snow-Hawk;16157487]When I had epilepsy, I didn't have any seizures (I mean, little to none) and I stopped breathing when it happened, luckily today this shit is cleared out. EDIT: To Cluckyx, epilepsy is curable if you get it under a low age (3 to 8 years old).[/QUOTE] Not so much curable in that it just goes away on it's own. If you get it pre-puberty. It tends to go away during puberty. If you get it during or post puberty you tend to be stuck with it for life.
[QUOTE=Cluckyx;16144653]OP[/QUOTE] It scares me when nobody would be bothered to help out another person like that. :/
My dad has epilepsy, he got it in a car collision when he was a kid. But he hasn't had a seizure in years, long before I was born.
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